Formy wsparcia pacjenta i rodziny w sytuacji choroby o zróżnicowanym przebiegu
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Słowa kluczowe

support
support, course of the disease
stroke
multiple sclerosis
Alzheimer’s disease

Jak cytować

Kołecka, B., & Kołecka, A. (2022). Formy wsparcia pacjenta i rodziny w sytuacji choroby o zróżnicowanym przebiegu. Studia Edukacyjne, (65), 137–147. https://doi.org/10.14746/se.2022.65.9

Abstrakt

The essence of the crisis situation is the breakdown of the current hierarchy of values, the reorganization of everyday life, the intensification of cognitive and emotional efforts to ensure relative intrapsychic homeostasis, and the psychosocial balance in various areas of life (including family and professional life). One of the crisis events is a disease that changes the daily life of individuals and their relatives. The aim of this study is to provide psychological characteristics of the patient in the situation of the disease with its various course, to present the consequences of the appearance of the disease on the level of intrapsychic and social life, and to indicate possible forms of intervention and support for people experiencing their own disease or the disease of a person in the family. An issue worth emphasizing is the provision of specialized, multi-level support for patients and families in the ongoing disease process. Appropriate and responsible therapeutic interactions in the cognitive and emotional dimensions can effectively reduce anxiety and stress reactions and thus contribute to better coping in a crisis situation.

https://doi.org/10.14746/se.2022.65.9
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Bibliografia

Arnett A.P., Barwick F.H., Beeney J.E., Depression in multiple sclerosis: review and theoretical proposal, Journal of the International Neuropsychological Society, 2008, 14(5). DOI: https://doi.org/10.1017/S1355617708081174

Awad A., Stüve O., Multiple Sclerosis in the Elderly Patient, Drugs Aging, 2010, 27. DOI: https://doi.org/10.2165/11532120-000000000-00000

Bethoux F., Gait disorders in multiple sclerosis, Lifelong Learning in Neurology, 2013, 19(4). DOI: https://doi.org/10.1212/01.CON.0000433286.92596.d5

Blight A.R., Treatment of walking impairment in multiple sclerosis with dalfampridine, Therapeutic advances in neurological disorders 2011, nr 4(2), s. 99-109. DOI: https://doi.org/10.1177/1756285611403960

Braak H., Braak E., Evolution of neuronal changes in the course of Alzheimer’s disease, Ageing and Dementia, 1998, 53. DOI: https://doi.org/10.1007/978-3-7091-6467-9_11

DeSousa E.A., Albert H.R., Kalman B., Cognitive impairments in multiple sclerosis: a review, American Journal of Alzheimer’s Disease & Other Dementias, 2002, 17(1). DOI: https://doi.org/10.1177/153331750201700104

Farr E., Altonji K., Harvey R.L., Locked-In Syndrome: Practical Rehabilitation Management, Narrative Review, 2021, 13(12). DOI: https://doi.org/10.1002/pmrj.12555

Forbes A., While A., Taylor M., What people with multiple sclerosis perceive to be important to meeting their needs, Journal of Advanced Nursing, 2007, 58(1). DOI: https://doi.org/10.1111/j.1365-2648.2007.04219.x

Grabher B.J., Effects of Alzheimer Disease on Patients and Their Family, Journal of Nuclear Medicine Technology, 2018, 46(4). DOI: https://doi.org/10.2967/jnmt.118.218057

Grabowska-Fudala B., Jaracz K., Obciążenie osób sprawujących opiekę nad chorymi po przebytym udarze mózgu, Udar Mózgu, 2006, 8(1).

Hoffmann S., Tittgemeyer M., von Cramon D.Y., Cognitive impairment in multiple sclerosis, Current Opinion in Neurology, 2007, 20(3). DOI: https://doi.org/10.1097/WCO.0b013e32810c8e87

Huijbregts S.C.J., Kalkers N.F., de Sonneville L.M.J., de Groot V., Polman C.H., Cognitive impairment and decline in different MS subtypes, Journal of the Neurological Sciences, 2006, 245(1-2). DOI: https://doi.org/10.1016/j.jns.2005.07.018

Jongen P.J., Ter Horst A.T., Brands A.M., Cognitive impairment in multiple sclerosis, Minerva Medica 2012, 103(2).

Kalb R., The emotional and psychological impact of multiple sclerosis relapses, Journal of the Neurological Sciences, 2007, 256. DOI: https://doi.org/10.1016/j.jns.2007.01.061

Klineova S., Lublin F.D., Clinical Course of Multiple Sclerosis, Cold Spring Harb Perspect Med., 2018, 8(9). DOI: https://doi.org/10.1101/cshperspect.a028928

Kouzoupis A.B., Paparrigopoulos T., Soldatos M., Papadimitriou G.N., The family of the multiple sclerosis patient: A psychosocial perspective, International Review of Psychiatry, 2010, 22(1). DOI: https://doi.org/10.3109/09540261003589588

Lassmann H., Multiple Sclerosis Pathology, Cold Spring Harb Perspect Med., 2018, 8(3). DOI: https://doi.org/10.1101/cshperspect.a028936

Leonardi F., The definition of health: towards new perspectives, International Journal of Health Services, 2018, 48(4). DOI: https://doi.org/10.1177/0020731418782653

Mahad D.H., Trapp B.D., Lassmann H., Pathological mechanisms in progressive multiple sclerosis, The Lancet Neurology, 2015, 14(2). DOI: https://doi.org/10.1016/S1474-4422(14)70256-X

Mazur-Mosiewicz A., Trammell B.A., Noggle C.A., Dean R.S., Differential diagnosis of depression and Alzheimer’s disease using the Cattell-Horn-Carroll theory, Applied Neuropsychology, 2011, 18(4). DOI: https://doi.org/10.1080/09084282.2011.595451

Mendiola-Precoma J., Berumen L.C., Padilla K., Garcia-Alcocer G., Therapies for Prevention and Treatment of Alzheimer`s Disease, BioMed Research International, 2016. DOI: https://doi.org/10.1155/2016/2589276

Morawska J.M., Gutysz-Wojnicka A., Problemy opiekunów chorych po udarze, Udar Mózgu, 2008, 10(2).

Österberg A., Boivie J., Central pain in multiple sclerosis – sensory abnormalities, European Journal of Pain, 2010, 14(1). DOI: https://doi.org/10.1016/j.ejpain.2009.03.003

Patti F., Cognitive impairment in multiple sclerosis, Multiple Sclerosis Journal, 2009, 15(1). DOI: https://doi.org/10.1177/1352458508096684

Perez-Gonzalez A., Vilajoana-Celaya J., Guardia-Olmos J., Alzheimer`s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief, International Journal of Environmental Research and Public Health, 2021, 18. DOI: https://doi.org/10.3390/ijerph18168838

Pękala K., Sobów T., Interwencje psychologiczne jako profilaktyka depresji poudarowej, Aktualności Neurologiczne, 2014, 14(3). DOI: https://doi.org/10.15557/AN.2014.0017

Porteri C., Petrini C., Research involving subjects with Alzheimer`s deisease in Italy: the possible role of family members, BMC Medical Ethics, 2015, 16(12). DOI: https://doi.org/10.1186/s12910-015-0009-9

Previnaire J.G., Lecourt G., Soler J.M., Denys P., Sexual disorders in men with multiple sclerosis: evaluation and management, Annals of Physical and Rehabilitation Medicine, 2014, 57(5). DOI: https://doi.org/10.1016/j.rehab.2014.05.002

Qiu Ch., Kivipelto M., Strauss E., Epidemiology of Alzheimer`s disease: occurrence, determinants, and strategies toward intervention, Dialogues in Clinical Neuroscience, 2009, 11(2). DOI: https://doi.org/10.31887/DCNS.2009.11.2/cqiu

Ratuszek-Sadowska D., Kowalski M., Woźniak K., Kochański B., Hagner W., Rehabilitacja neurologiczna pacjentki po udarze mózgu – opis przypadku, Journal of Education, Health and Sport, 2016, 6(8).

Rogers J.M., Panegyres P.K., Cognitive impairment in multiple sclerosis: evidence-based analysis and recommendations, Journal of Clinical Neuroscience, 2007, 14(10). DOI: https://doi.org/10.1016/j.jocn.2007.02.006

Rommer P.S., Milo R., Han M.H., Satyanarayan S., Sellner J., Hauer L., Illes Z., Warnke C., Laurent S., Weber M.S., Zhang Y., Stuve O., Immunological Aspects of Approved MS Therapeutics, Front Immunol, 2019, 11(10). DOI: https://doi.org/10.3389/fimmu.2019.01564

Sabiniewicz M., Niwald M., Machnia M., Włodarczyk L., Miller E., Wybrane zaburzenia funkcji poznawczych po udarze mózgu – charakterystyka kliniczna i diagnostyka, Aktualności Neurologiczne, 2015, 15(1). DOI: https://doi.org/10.15557/AN.2015.0006

Siegert R.J., Abernethy D., Depression in multiple sclerosis: a review, Journal of Neurology, Neurosurgery & Psychiatry, 2005, 76(4). DOI: https://doi.org/10.1136/jnnp.2004.054635

Skrzypek M., Nyka W.M., Wilczewska L., Siemiński M., Karwacka M., Janowicz A., Trybull A., Kass M., Wsparcie społeczne pacjentów po udarze mózgu w okresie hospitalizacji (wyniki wstępne), Udar Mózgu, 2007, 9(1).

Small J.A., Perry J., Lewis J., Perceptions of family caregivers` psychosocial behawior when communicating with spouses who have Alzheimer`s disease, American Journal of Alzheimer`s Disease and Other Dementias, 2005, 20(5). DOI: https://doi.org/10.1177/153331750502000510

Szulz B., Rodzinny wymiar troski – rola opiekuna osoby z chorobą Alzheimera, Annales UMCS Sectio J, 2017, XXX(4).

Tafti D., Ehsan M., Xixis K.L., Multiple Sclerosis, StatPearls Publishing Treasure Island, 2022.

Tiwari S., Atluri V., Kaushik A., Yndart A., Nair M., Alzheimer`s disease: pathogenesis, diagnostics, and therapeutics, International Journal of Nanomedicine, 2019, 14. DOI: https://doi.org/10.2147/IJN.S200490

Varhaug K.N., Torkildsen Q., Myhr K.M., Vedeler C.A., Neurofilament Light Chain as a Biomarker in Multiple Sclerosis, Front Neurol, 2019, 5(10). DOI: https://doi.org/10.3389/fneur.2019.00338

Vercoulen J.H.M.M., Swanink C.M.A., Galama J.M.D., Fennis J.F.M., Jongen P.J.H., Hommes O.R., Bleijenberg G., The persistence of fatigue in chronic fatigue syndrome and multiple sclerosis: development of a model, Journal of Psychosomatic Research, 1998, 45(6). DOI: https://doi.org/10.1016/S0022-3999(98)00023-3

Voigt I., Inojosa H., Dillenseger A., Haase R., Akgün K., Ziemssen T., Digital twins for multiple sclerosis, Frontiers in Immunology, 2021, 12. DOI: https://doi.org/10.3389/fimmu.2021.669811

Wender M., Neuropatologia stwardnienia rozsianego – fakty i kontrowersje, Aktualności Neurologiczne, 2009, 4(9).

Wichowicz H.M., Puchalska L., Rybak-Korneluk A., Puchalska M., Miejsce psychoterapii w prewencji i leczeniu depresji poudarowej, Psychiatria i Psychologia Kliniczna, 2018, 18(1).

Witkowska K., Ocena jakości życia pacjentów po przebytym udarze mózgu, Innowacje w Pielęgniarstwie i Naukach o Zdrowiu, 2021, 3(6). DOI: https://doi.org/10.21784/IwP.2021.013

Wysokiński A., Depresja poudarowa, Psychiatria i Psychologia Kliniczna, 2016, 16(3). DOI: https://doi.org/10.15557/PiPK.2016.0024