Słowa kluczowe
oncological diseases
professional activity
support
work
Jak cytować
Abstrakt
The article discusses the challenges cancer patients face in the workplace, with a focus on the reactions and support they receive from their colleagues. The study involved indepth interviews with cancer patients, employers representatives, and trade union representative. Specific examples of support and negative reactions were discussed - during treatment and in return-to-work process (RTW) after absence. The article also provides quotes from the respondents to highlight the diverse experiences of cancer patients in the workplace. The study revealed knowledge deficits among colleagues regarding the specificities of cancer, particularly in relation to long-term side effects. It also highlighted the persistent stereotypes and fears associated with cancer. Therefore, there is a need for social education to increase awareness about cancer and its long-term consequences, better communication among colleagues, and constructive support for cancer patients in the workplace.
Finansowanie
Artykuł powstał na podstawie niepublikowanych wcześniej fragmentów pracy doktorskiej pt. Funkcjonowanie społeczne i zawodowe osób z wybranymi postaciami choroby nowotworowej, napisanej pod kierunkiem prof. dr. hab. Kazimierza Przyszczypkowskiego i dr Izabeli Cytlak, obronionej w 2021 roku na Wydziale Studiów Edukacyjnych Uniwersytetu im. Adama Mickiewicza w Poznaniu. W trakcie realizacji badań autorka była stypendystką programu PhDo Polsko-Amerykańskiej Fundacji Wolności.
Bibliografia
Banning, M. (2011). Employment and breast cancer: A meta-ethnography: Breast cancer survivors and return to work experience. European Journal of Cancer Care, 20(6), 708–719. DOI: https://doi.org/10.1111/j.1365-2354.2011.01291.x
Carlsen, K., Jensen, A.J., Rugulies, R., Christensen, J., Bidstrup, P.E., Johansen, Ch., Huitfeldt Madsen, I.E., Dalton, S.O. (2013). Self-reported work ability in long-term breast cancer survivors. A population-based questionnaire study in Denmark. Acta Oncologica, 52(2), 423–429. DOI: https://doi.org/10.3109/0284186X.2012.744877
Caron, M., Durand, M.J., Tremblay, D. (2018). Perceptions of breast cancer survivors on the supporting practices of their supervisors in the return-to-work process: A qualitative descriptive study. Journal of Occupational Rehabilitation, 28(1), 89–96. DOI: https://doi.org/10.1007/s10926-017-9698-x
Chimienti, M., Morlino, G., Ingravalle, F., Vinci, A., Colarusso, E., De Santo, C., Formosa, V., Gentile, L., Lorusso, G., Mosconi, C., Scaramella, M., Rosca, V., Veneziano, E., Torino, F., Emberti Gialloreti, L., Palombi, L. (2023). Unemployment status subsequent to cancer diagnosis and therapies: A systematic review and meta-analysis. Cancers, 15(5), 1513. DOI: https://doi.org/10.3390/cancers15051513
Corbett, T., Groarke, A., Walsh, J.C., McGuire, B.E. (2016). Cancer-related fatigue in post-treatment cancer survivors: Application of the common sense model of illness representations. BMC Cancer, 16(1), 919. DOI: https://doi.org/10.1186/s12885-016-2907-8
Cybal-Michalska, A. (2009). Orientacje indywidualizm vs kolektywizm jako wzory mentalności – przyczynek do dyskusji na temat odmiennych etosów pracy. W: M. Piorunek (red.), Człowiek w kontekście pracy. Teoria, empiria, praktyka (s. 31–47). Wydawnictwo Adam Marszałek.
de Jong, M., Tamminga, S.J., de Boer, A.G.E.M., Frings-Dresen, M.H.W. (2016). The Quality of Working Life Questionnaire for Cancer Survivors (QWLQ-CS): A pre-test study. BMC Health Services Research, 16(1), 194. DOI: https://doi.org/10.1186/s12913-016-1440-4
Duijts, S.F.A., van Egmond, M.P., Spelten, E., van Muijen, P., Anema, J.R., van der Beek, A.J. (2014). Physical and psychosocial problems in cancer survivors beyond return to work: A systematic review. Psycho-Oncology, 23(5), 481–492. DOI: https://doi.org/10.1002/pon.3467
Gałuszka, A. (2005). Człowiek przewlekle chory: Aspekty psychoegzystencjalne. Wydawnictwo Uniwersytetu Śląskiego.
Grunfeld, E.A., Cooper, A.F. (2012). A longitudinal qualitative study of the experience of working following treatment for gynaecological cancer. Psycho-Oncology, 21(1), 82–89. DOI: https://doi.org/10.1002/pon.1874
Haywood, D., Dauer, E., Baughman, F.D., Lawrence, B.J., Rossell, S.L., Hart, N.H., O’Connor, M. (2023). „Is my brain ever going to work fully again?”: Challenges and needs of cancer survivors with persistent cancer-related cognitive impairment. Cancers, 15(22), 5331. DOI: https://doi.org/10.3390/cancers15225331
Hernandez, D., Schlander, M. (2021). Income loss after a cancer diagnosis in Germany: An analysis based on the socio‐economic panel survey. Cancer Medicine, 10(11), 3726–3740. DOI: https://doi.org/10.1002/cam4.3913
Juchnicka, M., Prystrom, J., Pogorzelski, M., Siderska, D. (2015). Przekroczyć granice – wsparcie doradczo-edukacyjne osób dotkniętych chorobą nowotworową. Modelowa asysta osobista. Białostocka Fundacja Kształcenia Kadr.
Kahn, R.L., Antonucci, T.C. (1980). Convoys over the life course: Attachment, roles, and social support. Life-Span Development and Behavior, 3, 253–286.
Kalfa, S., Koelmeyer, L., Taksa, L., Winch, C., Viveros, H., Gollan, P.J., Mackie, H., Boyages, J. (2019). Work experiences of Australian cancer survivors with lymphoedema: A qualitative study. Health & Social Care in the Community, 27(4), 848–855. DOI: https://doi.org/10.1111/hsc.12698
Kemp, E., Knott, V., Ward, P., Freegard, S., Olver, I., Fallon‐Ferguson, J., Emery, J., Christensen, Ch., Bareham, M., Koczwara, B. (2021). Barriers to employment of Australian cancer survivors living with geographic or socio‐economic disadvantage: A qualitative study. Health Expectations, 24(3), 951–966. DOI: https://doi.org/10.1111/hex.13238
Krajowe profile dotyczące nowotworów: Polska 2023. (2023). OECD Publishing.
Kryńska, J., Marzec, T. (2016). Onkolodzy. Walka na śmierć i życie. The Facto.
Lange, M., Joly, F. (2017). How to identify and manage cognitive dysfunction after breast cancer treatment. Journal of Oncology Practice, 13(12), 784–790. DOI: https://doi.org/10.1200/JOP.2017.026286
Lilliehorn, S., Hamberg, K., Kero, A., Salander, P. (2013). Meaning of work and the returning process after breast cancer: A longitudinal study of 56 women. Scandinavian Journal of Caring Sciences, 27(2), 267–274. DOI: https://doi.org/10.1111/j.1471-6712.2012.01026.x
Lindbohm, M.L., Kuosma, E., Taskila, T., Hietanen, P., Carlsen, K., Gudbergsson, S., Gunnarsdottir, H. (2014). Early retirement and non-employment after breast cancer. Psycho-Oncology, 23(6), 634–641. DOI: https://doi.org/10.1002/pon.3459
Main, D.S., Nowels, C.T., Cavender, T.A., Etschmaier, M., Steiner, J.F. (2005). A qualitative study of work and work return in cancer survivors. Psycho-Oncology, 14(11), 992–1004. DOI: https://doi.org/10.1002/pon.913
Marinas-Sanz, R., Iguacel, I., Maqueda, J., Mínguez, L., Alquézar, P., Andrés, R., Pérez, E., Sousa, R., Moreno-Atahonero, E., Solé, D., Güemes, A., Martínez-Jarreta, B. (2023). Facilitating factors and barriers in the return to work of working women survivors of breast cancer: A qualitative study. Cancers, 15(3), 874. DOI: https://doi.org/10.3390/cancers15030874
National Business Group on Health, American Cancer Society. (2017). CANCER IN THE WORKPLACE. Co-worker Tip Sheet. For co-workers of employees diagnosed with cancer, in treatment and beyond. https://www.cancer.org/content/dam/cancer-org/onlinedocuments/en/pdf/flyers/cancer-in-the-workplace-co-worker-tip-sheet.pdf
Nilsson, M.I., Olsson, M., Wennman-Larsen, A., Petersson, L.M., Alexanderson, K. (2013). Women’s reflections and actions regarding working after breast cancer surgery – a focus group study. Psycho-Oncology, 22(7), 1639–1644. DOI: https://doi.org/10.1002/pon.3192
Nilsson, M.I., Petersson, L.M., Wennman-Larsen, A., Olsson, M., Vaez, M., Alexanderson, K. (2013). Adjustment and social support at work early after breast cancer surgery and its associations with sickness absence. Psycho-Oncology, 22(12), 2755–2762. DOI: https://doi.org/10.1002/pon.3341
Pera, H. (1993). Sam nie podołam. W: H. Bortnowska (red.), Sens choroby, sens śmierci, sens życia (s. 177–252). Wydawnictwo Znak.
Pilch, T. (1995). Zasady badań pedagogicznych. Wydawnictwo Akademickie „Żak”.
Rasmussen, D.M., Elverdam, B. (2008). The meaning of work and working life after cancer: An interview study. Psycho-Oncology, 17(12), 1232–1238. DOI: https://doi.org/10.1002/pon.1354
Robinson, L., Kocum, L., Loughlin, C., Bryson, L., Dimoff, J.K. (2015). I wanted you to know: Breast cancer survivors’ control of workplace communication about cancer. Journal of Occupational Health Psychology, 20(4), 446–456. DOI: https://doi.org/10.1037/a0039142
Suchodolski, B. (1974). Integracja człowieka i współczesnej cywilizacji. W: J. Aleksandrowicz (red.), Rewolucja naukowo-humanistyczna (s. 15–26). Państwowe Wydawnictwo ,,Wiedza Powszechna”.
Sun, W., Chen, K., Terhaar, A., Wiegmann, D.A., Heidrich, S.M., Tevaarwerk, A.J., Sesto, M.E. (2016). Work-related barriers, facilitators, and strategies of breast cancer survivors working during curative treatment. Work, 55(4), 783–795. DOI: https://doi.org/10.3233/WOR-162449
Ślusarska, B., Dobrowolska, B., Zarzycka, D. (2013). Metateoretyczny kontekst zachowań zdrowotnych w paradygmatach zdrowia. Problemy Higieny i Epidemiologii, 94(4), 667–674.
Tamminga, S.J., Jansen, L.P., Frings-Dresen, M.H.W., de Boer, A.G.E.M. (2020). Long-term employment status and quality of life after cancer: A longitudinal prospective cohort study from diagnosis up to and including 5 years post diagnosis. Work, 66(4), 901–907. DOI: https://doi.org/10.3233/WOR-203234
Tamminga, S.J., Wolvers, M.D.J., Greidanus, M.A., Zaman, A.G.N.M., Braspenning, A.M., Frings-Dresen, M.H.W., de Boer, A.G.E.M. (2019). Employees Diagnosed with Cancer: Current Perspectives and Future Directions from an Employer’s Point of View. Journal of Occupational Rehabilitation, 29(2), 472–474. DOI: https://doi.org/10.1007/s10926-018-9802-x
Tiedtke, C., de Rijk, A., Dierckx de Casterlé, B., Christiaens, M.R., Donceel, P. (2009). Experiences and concerns about ‘returning to work’ for women breast cancer survivors: A literature review. Psycho-Oncology, 19(7), 677–683. DOI: https://doi.org/10.1002/pon.1633
Von Ah, D., Storey, S., Tallman, E., Nielsen, A., Johns, S., Pressler, S. (2016). Cancer, cognitive impairment, and work-related outcomes: An integrative review. Oncology Nursing Forum, 43(5), 602–616. DOI: https://doi.org/10.1188/16.ONF.602-616
Yarker, J., Munir, F., Bains, M., Kalawsky, K., Haslam, C. (2009). The role of communication and support in return to work following cancer-related absence. Psycho-Oncology, 19(10), 1078–1085. DOI: https://doi.org/10.1002/pon.1662
Zierkiewicz, E., Wechmann, K. (2016). Życie od nowa: Społeczne zaangażowanie Amazonek – aktywnych pacjentek. Federacja Stowarzyszeń „Amazonki”: Instytut Pedagogiki Uniwersytetu Wrocławskiego.
Licencja
Prawa autorskie (c) 2023 Natalia Ulaniecka
Utwór dostępny jest na licencji Creative Commons Uznanie autorstwa – Bez utworów zależnych 4.0 Międzynarodowe.