Keywords
parenting
disorders of sex determination
society
social pressure
How to Cite
Abstract
Intersexualism is often treated as a secret in medical and family systems. According to the thesis that intersex body is pathological and requires immediate surgical and hormonal regulation, intersex persons are subject to the process which involves rapid production of normative masculinity or femininity through invasive clinical practices. The goal of the study was to diagnose the experiences of parents of an intersex child with searching for support during the treatment for both the child and themselves. The study was conducted by means of individual semi-structured interview. The results are presented as a case study. It was shown that parents do not always receive the necessary social and medical support, and their children are treated as sensations and pathologies, regardless of the fact that empathy and acceptance are critical for making the right treatment-related decisions.
References
Alderson, J., Madill, A., & Balen, A. (2004). Fear of Devaluation: Understanding the Experience of Intersexed Women with Androgen Insensitivity Syndrome. British Journal of Health Psychology, 9, 81–100. https://doi.org/10.1348/135910704322778740 DOI: https://doi.org/10.1348/135910704322778740
Babbie, E. (2012). The Practice of Social Research. Cengage Learning.
Babbie, E. (2016). The Basics of Social Research. Wadsworth Publishing Co Inc.
Brossi, L., Landa, M.L., & Ortíz de Zarate, A. (2012). The Intersex Movement: Empowering Through New Technologies. International Journal of Humanities and Social Science, 2 (22), 64–75.
Castillo, J.J. (2009). Snowball Sampling. experiment-resources.com
Consortium on the Management of Disorders of Sex Development. (2006). Handbook for Parents. Intersex Society of North America.
Cornwall, S. (2012). Intersex, Identity and Disability: Issues for Public Policy, Healthcare and the Church. Briefing Paper 4: Intersex Conditions (DSDs): Some Christian Theological Implications. Lincoln Theological Institute, Manchester.
Creswell, J. (2014). Research design: Qualitative, quantitative, and mixed method approaches. Sage Publications Inc.
Feder, E. (2014). Making Sense of Intersex: Changing Ethical Perspectives in Biomedicine. Indiana University Press.
Gerring, J. (2006). Case study research: principles and practices. Cambridge University Press. https://doi.org/10.1017/CBO9780511803123 DOI: https://doi.org/10.1017/CBO9780511803123
Greenberg, J.A. (2012). Intersexuality and the Law: Why Sex Matters. Thomas Jefferson School of Law Research Paper No. 1996227, 35-38. New York University Press. https://doi.org/10.18574/nyu/9780814731895.001.0001 DOI: https://doi.org/10.18574/nyu/9780814731895.001.0001
Harper, C. (2007). Intersex. Berg.
Holmes, M. (2008). Intersex: A Perilous Difference. Susquehanna University Press.
Karkazis, K., & Rossi, W. (2010). Ethics for the Pediatrician: Disorders of Sex Development: Optimizing Care. Pediatric Review, 31, e82-e85. https://doi.org/10.1542/pir.31-11-e82 DOI: https://doi.org/10.1542/pir.31-11-e82
Karkazis, K., Tamar-Mattis, A., & Kon, A. (2010). Genital surgery for disorders of sex development: implementing a shared decisionmaking approach. Journal of Pediatric Endocrinology and Metabolism, 23, 789-806. https://doi.org/10.1515/jpem.2010.129 DOI: https://doi.org/10.1515/jpem.2010.129
Kessler, A. (1998). Lessons from the Intersexed. Rutgers University Press.
Kothari, C.R. (2009). Research Methodology: Methods and Techniques. New Age International Publishers.
Lane, J.M. (2018). Reproducing Intersex Trouble: An Analysis of the M.C. Case in the Media (Doctoral dissertation). University of South Florida. http://scholarcommons.usf.edu/etd/7187
Lee Schofield, S. (2013). You’d better get in there and be the advocate: parents of gender nonconforming children’s perspectives on support. North Dakota State University.
Leidolf, E. Curran, M., Scout, & Bradford, J. (2008). Intersex Mental Health and Social Support Options in Pediatric Endocrinology Training Programs. Journal of Homosexuality, 54(3), 233-242. https://doi.org/10.1080/00918360801982074 DOI: https://doi.org/10.1080/00918360801982074
Markosyan, R., & Ahmed, S. (2017). Sex Assignment in Conditions Affecting Sex Development. Journal of Clinical Research in Pediatric Endocrinology, 9(2), 106-112. https://doi.org/10.4274/jcrpe.2017.S009 DOI: https://doi.org/10.4274/jcrpe.2017.S009
Mayer, L., & McHugh, P. (2016). Introduction, Sexuality and Gender: Findings from the Biological, Psychological, and Social Sciences. Special Report. The New Atlantis, 50, 10-12.
Meoded-Danon, L., & Yanay, N. (2016). Intersexuality: On Secret Bodies and Secrecy. Studies in Gender and Sexuality, 17(1), 57-72. https://doi.org/10.1080/15240657.2016.1135684 DOI: https://doi.org/10.1080/15240657.2016.1135684
Sørlie, A. (2016). Legal Gender Meets Reality: A Socio-Legal Children's Perspective. Nordic Journal of Human Rights, 33(4), 353-379. https://doi.org/10.1080/18918131.2016.1123831 DOI: https://doi.org/10.1080/18918131.2016.1123831
Tamar-Mattis, A. (2006). Exceptions to the Rule: Curing the Law’s Failure to Protect Intersex Infants. Berkeley Journal of Gender, Law and Justice, 21, 59–110.
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